Pain.
It’s now just after 4.00 on Friday afternoon and I’m struggling, I know why and it’s not worrying me too much but, pain is pain.
Recently I’ve experienced extremes of sensations, aches and pains, weakness and bad coordination. As I said I totally understand why, but at times it’s difficult to cope. I’ve talked about my hummingbird bladder, y’know I look at water and the need to go is there. Well the aches and pains and weakness make the trip (as short as it is) difficult.
These feelings, problems have come about because of the exercise, not extreme for most but in my case then yes it is.
The fact is that MS plays havoc with the CNS as doctors refer to it, the central nervous system is apparently attacked by the immune system, making the mistake by thinking that foreign invaders are residing there. Idiots!!! Surely they just need to be told that they are Stef’s good guys and need to be left alone, If only it was that easy.
Well obviously it’s not, so what happens is the myelin sheath, think of insulating tape around the nerves in the brain is broken up revealing raw nerve which comes into contact with other raw nerves. As I’m sure you can imagine, the effect can be quite calamitous.
So back to the exercise, I get really weak so push on with the exercise, this helps a lot within a day. The problem is that the nerves are constantly being attacked which means the problem is never ending. But as you well know, I’m a stubborn scouser so f#):k you MS…….. Sorry mum.
Ok it’s now almost 11pm and after a 3 hour struggle I’m finally in bed. This evening was a great reminder that although I think I know what’s best for me, obviously I don’t. Debbie had said before she left at lunchtime that I was hotter than it seemed and as you know heat or humidity are killers for me.
At about 6.45 I went to the loo, or at least I tried, halfway there my left leg simply refused to work then after a 10 minute struggle I fell quite heavily against the door jamb. Ignoring my cheek that hurt like hell I attempted to crawl into the bathroom. That was a joke or at least that’s how it would have looked had there been anyone watching. After 30 minutes of absolute struggle I gave up and tried to get into the bedroom. It was pathetic trying to crawl and attempting to get on my hands and knees. I was so weak I couldn’t do either and my attempts always ended with face planting, ouch. I’d not realised at the time but the closeness and humidity made me ridiculously weak, while on the floor i hadn’t the strength to bend my leg and push myself forward.
As I said a totally exhausted me finally managed to get on the bed, tomorrow’s lesson, keep the window open.
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