If you Google the disease that insists on squatting in me it states that most people with it live as long as those without it, obviously these people are those with what is classed as Remitting/Relapsing and are on the required medication.
Some of those can still get around probably with a cane or walker, but the statistics don’t reflect the other restrictions such as extreme fatigue or balance or even blindness. Once a year I see a neurologist, it was twice per year but because getting to see him took most of the day travelling to and from the hospital in Nottingham and a two hour wait it wasn’t a feasible option really. in order for me to get there required either Suzie or Debs to take me then the neurologist told me I was at stage 4 and nothing could be done with drugs so I couldn’t see the point of wasting mine or the hospital’s time.
The last visit to see the neurologist, a really nice Greek doctor, he talked to me for 10 minutes and said he thought that what I was doing was helping and because of it to keep doing what I’m doing.
In some ways I was frustrated that “The Doctors” said there was nothing they could do but in another way I felt good, actually very positive and proud of myself, “They” can’t help but little old me will bring about something they said wasn’t possible, in their eyes, possibly but as far as I’m concerned what I will do will be total healing.
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