My Ah ha moment..

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As I’ve said before, my days are pretty much the same regardless of it being a workday or weekend, the routine of supplements and consuming my water and special drinks is 99% of the time exactly the same. That might seem incredibly boring to you but it’s a procedure that keeps me alive. No that’s not an exaggeration it’s a fact, by not having the water I become frighteningly dehydrated so much so that I’m unable to move at all. Similar things happen if I don’t take my salt capsules or the nutritional supplements. I’m sure some of you cringed when I mentioned the Salt caps…. contrary to the constant, blatant lies being told about salt, it is imperative that everyone takes salt everyday. Now to clarify that statement of fact, good salt, ideally Himalayan Crystal salt is jam packed with essential trace elements the human body needs, as opposed to nutritionally bereft table salt that does nothing good but lots of bad things to all the organs in your body.

Getting back to my point, on Sunday I did something different, not relevant to explain precisely but needless to say, something different. That evening I suffered terribly, the change in my physicality was like night and day, I was confused and quite sad until it clicked in my head, it was like a flipping light going on,  that Ah ha moment will help significantly. This complex disease that has unlawfully taken up residence is going to be difficult to beat but it will happen, of that I have no doubt.

My why…

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Okay so let’s set the scene, you’re going to have to take yourself back to when you were a 10 or 11 year old kid…..got it… Okay, now you know that for 99% of the time you are a good kid, you do all the right things, follow orders, requests by your parents and do better than average at school. This being the case under normal conditions you are pretty pleased with yourself, that’s is until you just seem to go through and uncontrollable rebellious streak. It only lasts for a couple of weeks but it’s happened and even though deep down you know it’s wrong you just changed. It’s at this time your parents decide to punish you, not in a physical way as that’s not acceptable these days, 20, 30 or 40 years ago it was perfectly acceptable but for reasons I don’t understand its not the done thing now. Back to my point, your parents have told you that the Christmas present you’ve been dreaming about is just not going to happen because you’ve been a rebellious, uncontrollable little monster so the prezzy you’d hoped for isn’t going to be waiting for you to open on Christmas morning. You being you accept that as a little monster you don’t deserve to get anything nice, you aren’t going to be rewarded for being a bad person. So one morning you wake and decide that your monster like phase has passed so back to being good, and hope that your rebellious spell will be forgiven, you’ll be in your parents good books again, you hope!! As the weeks and months go by you’ve reverted back to what for all but a two week period had been your normal ways. But your parents even though are treating you as their normal loving child have maintained that you need to learn a lesson that your behaviour during that two or three week spell was just not something that can be accepted so the special gift you were hoping for is still off the table. Now as much as you know you were a little monster you also know that it was a small break from your normal self and you’re back so surely you deserve your special gift. Your parents say no and you’ve lost the chance to be rewarded until you show that the bad you has truly gone. Now one day even though you are still sad inside but being a good kid you stumble across a big box in the basement and look inside, you are absolutely blown away because inside you see the gift you always wanted. Now you know your parents are trying to teach you a lesson by telling you that you lost your chance at being rewarded at Christmas, you know you weren’t supposed to find it but you know it’s there. They don’t know that you know so they keep up the charade, it’s frustrating for you because no matter what they tell you, no matter what they think you do or don’t know, it’s different now because you know, you’ve seen it, it’s happening.

Now liken this to me, to my current situation, I’ve got a horrible disease, I’m experiencing horrible things 24 hours a day, the doctors tell me that there’s nothing that can be done and if anything it’s just going to get worse. Okay I’m the little kid and regardless of what’s being told to me, I’ve seen the prezzie, I know I’m going to get it, the difference is I just don’t know when my Christmas day is going to be. I’m happy because knowing is my Why.

Part five…

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Think about it, big pharma spend billions on advertising their potions, you get sick so you take legal action but in the meantime you’ve helped line the coffers of two giants. While that is happening the insurance scam is growing, the food industry are not interested in health so they pile more and more contaminants into our food. And guess what, yes you get sicker meaning the insurance and big pharma are real happy.
To add to all this the ADA/AMA and ASA are spreading more and more misinformation so you get even sicker and use more drugs, it is such a travesty of justice how these groups are conspiring to make the world a sicker place, well most of the world anyway.
In October 08 I attended a three day training for new dentist’s in Colorado Springs, at the end of the first day I was leaving the hotel, in the elevator with Dr Blanche Grube and Dr Marilyn Medina, Dr Grube asked if I was going to have a total dental revision. I explained that this wasn’t possible financially for me although it was probably more important I have it than for most other people. When I explained I had MS, the shocked look on both their faces was a picture I’ll never forget.
Dr Blanche told me….yes told me that I was to come to Pennsylvania for treatment, then to my utter surprise told me that she would do this treatment for nothing, nada, zilch money. With tears in my eyes I hugged her and thanked her from the bottom of my heart, after nine years I was finally going to get better. I’d had the necessary impressions made with a local Huggins trained dentist which were then sent to Dr Grube, I’m sure you can imagine how excited and nervous I was when I arrived in Scranton knowing I was about to have an operation that could possibly change my life.

One or the other..

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Think about it? I really dislike doing this but when it comes down to it my life is the most important thing to me, so I can either accept that what I have of life is the best it can be and please understand that it’s pretty crap as it is. My day regardless of which one as they are all the same, my day begins when I wake which is usually around 5.30 am, I tend to check emails, play words with friends and meditate till I get up at 7.45 ish. At this time I’ve also drank a litre of water with baking soda. Breakfast is just a Snack a Jack rice cake then my supplements. I shuffle to the sofa and probably read. My days revolve around drinking about 4 1/2 litres of water with stuff in, having lunch and seeing my neice/carer for 45 minutes. Writing for my blog and watching a bit of early evening tv before going back to bed 12 hours after I left it, apart from 20 trips to the loo that’s my day Monday through Sunday. So as I said I can either accept that, or believe there’s something more. I don’t know what you would do but I do know what I would do…..Any freaking thing….. I’m never giving in even though what it is now is crap, although the weather to most of you is nice, it’s horrendous for me, just living my life is tough but the heat and humidity make it ten times worse, it really does. So asking for help, physically or financially is downright embarrassing, it’s humiliating so please understand this is so  hard for me. If……if everyone reading this cared enough to donate the price of a Starbucks each week for a month then I’d be so much closer to having Stem cell treatment and be able to Want to live. To be totally honest with you, if this was me reading about one of you, a friend or acquaintance asking for help, I’d be ashamed of myself if I didn’t do what I could to help.

One or the other…..you either haven’t seen my plea or you don’t give a crap… Go on, a fiver a week for a month, no big deal….

Garden of the Gods…

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Garden of God’s.

Today I’ve felt really good even though it’s a hot and humid day, great for most people but it can be very awkward from me, the temperature tends to make it very difficult. I’m still trying to work out why specifically for people with MS, my thoughts although not proven scientifically is that my body struggles to carry oxygen (oxyhaemoglobin) in the red blood cells to the organs. In my opinion of course, this results in extreme fatigue so much so that my legs simply will not move or have the strength to support me. So when the weather is like today, this week then I have to have all the windows open, fans going and blinds closed, but yesterday was fine and so far today I’m coping.

The title of this post, Garden of the Gods. I was chatting to a friend earlier and was talking about our “go to places”, where I would go to for a couple of hours to just “be”, to just reflect on life. Garden of the Gods is a national park a few miles from where I lived in Colorado springs. I went to the official website and took a video tour, it was beautiful and I’m not ashamed to say I cried like a baby, I’m not depressed or sad but I really miss being there. My promise to me is like Arnie said “I’ll be back”.

 

Part four..

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I became very concerned by this ever growing weakness that seemed to be spreading throughout my body. I saw my doctor who referred me to a neurologist who after a bunch of tests informed me quite bluntly that I had MS, we then had a heated discussion as I refused to take the medication. Several years later I interviewed for a job with Dr Hal Huggins, the more I read about this man the more I was in awe of him. He had made a stand against the all powerful ADA and FDA by proving amalgam fillings were dangerous. This didn’t go down well with a billion dollar giants, the ADA and FDA who were also in the pockets of the trillion dollar mega giants, the pharmaceutical industry.

 

Doc was about to offer me the job of Client Service Director when he asked me if I was prepared to lose all my friends. At first I thought this a rather strange question. I asked why would he ask that, he then said, “when you know what you’ll know, you’ll lose all your friends. I was intrigued and excited but eventually I said yes and started working a week later.

As my knowledge expanded with sitting in on doc’s consultations and reading all his books, I understood what he meant when he asked if I was prepared to lose my friends. It became obvious that so much of what is generally understood by the general public is tainted and twisted misinformation being spread by the hierarchy of six trillion dollar conglomerates.

Headed by the Pharmaceutical industry the others are the Oil and Gas giants, Food, Insurance, Law and I will group the ADA/ASA and AMA together.

Donate and help ?  

 

Confusing…

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As I’ve said before I am forever assessing my progress or lack of it on occasions. If this disease is trying it’s best to destroy the healthy cells in my body and its doing this 24/7 then any progress is constantly being negated. So if in the main I’m not getting significantly worse then I see this as winning, does that make sense? To a certain degree I take my progress for granted and get annoyed at myself when I take a step backwards, albeit a temporary setback. Over the last month or so I feel I’ve definitely made improvements, minor ones but significant to me. I get confused because of the setback, but in reality what I should be feeling is gratitude. I think the retrograde step is minimal and temporary, it tends to last as long as a good rest. I’m not a medical professional, I’m not able to use a lab to properly examine my blood so it’s simply a case of trial and error, New supplements and methods take time and patience so I shouldn’t feel confused I should just be proud and confident.

Go on !!! buy me a coffee….

Part three

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At first it seemed that everything would be ok, my teeth were fixed so I had a nice smile but little did I know that it would be the start of a decade and more of pain and despair.
I had been investing in a stock, of which I owned 128,000 shares, I’d been informed that they would go for their IPO at anytime but that wasn’t the case. An extremely wealthy man, Geoff Squires had invested millions of pounds in the company so the shares were consolidated which basically meant my holding was reduced to 12,800. Obviously GS thought very highly of this company because he poured more money in so the shares were again consolidated reducing my 12,800 to 1,280. At this time I had to return to England and find a regular job.
A couple of years later I started my own business, a web media company selling advertising and web pages, it was good but hard work.
At the end of 2001 I met a woman through some friends and moved to the States, my first thoughts were to meet this woman and see how things went but after a short time it became obvious that we felt a lot more for each other and we married.
Dona was a graphic designer and had her own business near Denver, Colorado, I got a job working for A.D.T.   in the newly formed Fire Systems Group, a division aimed at servicing the fire and security needs of companies in the Denver metro area.
My life seemed good to me, although my wife’s personality seemed to change. In hindsight the change in personality and attitude towards me should have alerted me to what was really going on, but, ever the romantic optimist I ignored the signs.
I continued to exercise daily although it worried me that my stamina was failing, I couldn’t ride my mountain bike as far or as hard as I did before. Even though I worked out with weights 3 times per week I seemed to be getting weaker not stronger. We sold the house near Denver and bought a bigger place in Castle Rock, it wouldn’t be finished for six months so we moved in with some good friends.

Who is Stefan continued..

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The launch was constantly delayed for one reason or another so I had to wait patiently for it to happen, let me tell you it was not an easy thing to do.
Back to that terrible day in Florida, I had left the gym then called into Winn Dixie for my groceries then headed back to my condo on Anastasia Island. My condo was on the third floor, three steps from the top with hands clutching my sports bag and shopping bags I tripped. Not having a hand free to break my fall I used my face, ouch, not a good thing to do.
I opened my eyes to see teeth and blood sprayed out on the top step, The initial shock and the adrenaline surging through my veins stopped me from crying like a baby but needless to say, I was in a lot of pain.
My brother Brian and his family were staying in the condo next to mine so I clawed my way to his door and knocked, Jeni was the first to see me and the shock on her face frightened me, blood running through my fingers with my palm over my mouth.
Brian and Jeni were great, helping me to gather everything from the steps, then calling several dentists to find one that could see me now.
The next month went by very slowly which couldn’t be said for the money spent on fixing my teeth and my deepest thanks go to my incredible mum for her financial help.

Who is Stefan…

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From my book, Who is Stefan.

I wanted to explain a little more about myself and what’s happened over the years, I would consider myself a bit of a daredevil in lots of ways, I’ve done over 800 skydives, I was a hang glider pilot, a scuba diver, mountain biker, rock climber and a pilot. I was always interested in trying new things and seeing new places, I’ve been very fortunate to have been able to travel to so many countries around the world, 24 to be exact.

My life seemed to be so complete, I’ve had great jobs, two great kids and what most people would consider to be a very comfortable life, that was until a terrible day in 1999.

I was living in Florida and expecting the launch of a company I owned 128,000 shares in during the dot com boom. It was anticipated that the shares would launch at $15 and reach $50 within a week or so, this meant that I’d be able to sell my 128,000, I’d make almost $6.5m and I’d be a multimillionaire.

p.s. That didn’t happen as I’d believed.

Just think about it, wouldn’t you feel good about yourself knowing you’d helped in healing me of a supposedly incurable disease, please donate what you can.